It's been a rough few days for us. Monday was busy and Cleve really felt it on tuesday. After the fitting appointment in the morning we had breakfast, Cleve took two Vicodin and slept until about 9 pm. He was up for a good three hours and then fell asleep for the rest of the night. The good thing is that after the naps, Cleve has felt the best he has in a few days.
We went in for the cyber knife treatment today at noon, the first of two. Befor the treatment we spoke to Dr. Gibbs, the radiation oncologist. She told us that after reading the scans we took on Monday she found a total of eight tumors in his brain and even though there were that many she was still going to do the radiation treatment. She also said that if there are that many tumors now than there are probably some low level ones not showing up yet and we might do whole brain radiation in the future. She wants to see how Cleve responds to this treatment first though. Some general symptoms of wbr is hair loss and memory loss resulting in some time off work most likely. It's not so much memory loss rather than his recollection and general thinking would be slowed, which could recover over time. Bad news.
Our next set of bad news came when Dr. Hwu called Cleve to tell him that upon thawing out his TIL cells, 60% of them died leaving too few to perform the TIL treatment, thus excluding us from the study we were so desperately hoping to get into. Ok. The good news however is that she will be getting us to Houston in the beginning of February to begin biochemical therapy. As Dr. Hwu put it, we are now able to do what we want to do. we will do two rounds each lasting a week with two weeks at home in between. After that we will have scans to asses the effects. This is our current plan of action. The good with the bad right? At least we have a plan to go on.
When I get home I will also be posting some pictures of some of the events from throughout the week, I just cant do it from my iPad at the moment. I will keep everyone posted, as usual of any changes
My thoughts and prayers are with you! Hang in there! Thank you for posting and keeping all of us up to date! Love to you both!
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