It has been a very long and eventful day. We finally got to bring Cleve home. He had some apprehension about coming home because he didn't want to be a burden to me and the kids. He now realizes that home is the best place to be and the most comfortable. We got to leave at about 3pm. and unfortunately got a little car sick on the way home, but once we got home he drifted in and out of sleep which he really needed. We also met the hospice nurse who brought us all of our medications and basically gave us an introduction to how hospice works. Wow, what an orientation, its all a bit surreal. I wake up in the morning realizing, no, it hasn't all been a dream. We will be meeting with the hospice social worker tomorrow, who will help with more of the family issues and not the meds issues. There are people taking care of all aspects of this process, and I am so happy I have them to fall back on.
The amount of support we have received has been incredible and I honestly do not know how to even begin to thank everyone. Everyone from friends, to hospital staff, to friends and fellow caregivers...it humbles me to see everyones generosity and I am so thankful to you all.
As I review my day, it seemed hectic and crazy but as I write about it, I think, is this really all we did? why am I so exhausted? But yes, we spoke with doctors and we came home and then spoke with hospice. Thats about it. But the truth is, is that I am tired, and so I apologize for the short posts. I want to keep everyone up to date even if our days are not as eventful as they may seem. We continue to work on pain control, a never ending cycle it seems, especially now that I am taking care of administering the meds without a nurse being right there. And I am sure this is what we will be doing tomorrow. And we will be taking advantage of and cherishing every lucid moment that we are blessed with. So...until tomorrow...good night.
Happy Birthday, Cleve! I just spoke to my Dad, and he said that he and the boys are going to fog with you tomorrow to celebrate. I think I may MacGyver a fog for myself, down here in Chile, to join in the fiesta, too! Hey, I also wanted to tell you that I come back to Oregon in January, and I plan on taking the boys up to the mtn for as much ski time as they will allow. I have already been thinking of what snacks to stuff my pockets with for the long, cold chair rides, in order to keep them interested : ) I hope you can enjoy your family and friends tomorrow.
ReplyDeleteI am filled with LOVE for you all,
Margo
so sorry :( Tell Cleve his cousin Leslie and auntie Babe love him. Our hearts overflow for you all...
ReplyDeleteHi Cleve! So glad to hear you are settling in back home. Everyone in the PACU is thinking of you and your family and sending positive thoughts your way! Of course, we miss seeing your big smile :-) Love, Amy
ReplyDeleteHappy Birthday Cleve!
ReplyDeleteI know we don't know each other very well but still wanted to wish you a happy birthday and let you know you are in
my thoughts and prayers. I remember when I met your
wife and boys at the ENT Clinic. What a beautiful family and I will always remember how you "beamed " as you talked about the boys.
God bless.
Charlene Norman